---
title: Faulty Healthcare System is Duping Special-Needs Parents
description: This article aims to make the special needs parents aware of how a faulty healthcare system is ripping them off. Read Cynthia's take on the issue.
image: https://www.assuaged.com/hubfs/Assuaged_December2019%20Theme/images/BLOG-RESIZE-9-1.jpg
---

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# Dear Special-Needs Parents: Being Duped by a Faulty Healthcare System?

![Cynthia Cherise Murphy](https://www.assuaged.com/hubfs/15%20-%20Interns/Cynthia-Cherise-Murphy-Headshot-2024.jpeg)

by [Cynthia Cherise Murphy](https://www.assuaged.com/news/author/cynthia-murphy)

CONTRIBUTORS

[Cynthia Cherise Murphy](https://www.assuaged.com/news/author/cynthia-murphy)

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Have you noticed the increase in [chronic illness](https://www.who.int/dietphysicalactivity/publications/trs916/summary/en/) among children and adults with disabilities? I’ve seen countless families torn apart and derailed after being left on the trail of devastation. Sadly, many of these grief-stricken people have been affected to such a degree, all ties have been broken, and now their children are no longer with us.

It’s heartbreaking to bear witness to these parents trying to cope with the [death of a child](https://susanmacfarlanenutrition.com/why-plant-based/) while longing for what should have been. A parent’s worst fear is outliving their children. It’s even especially painful for these families living with immense regret and guilt that they didn’t do enough.

We are often left to suffer health disparities due to [craniofacial anomalies](https://www.faces-cranio.org/Disord.htm), a rare genetic disease that causes severe internal and external bodily malformations. Chronic illnesses are inevitable.

The reality is that we’ve been failed by many of our own specialist doctors within a misleading healthcare system.

I first noticed the staggering increase in child craniofacial-related deaths last year while assisting [Dr. Justine Lee](https://www.uclahealth.org/justine-lee) of [UCLA](https://www.uclahealth.org/mattel/about-mattel-childrens-hospital-ucla) to gather participants for a study involving a rare genetic craniofacial condition known as [Saethre-Chotzen Syndrome](https://ghr.nlm.nih.gov/condition/saethre-chotzen-syndrome#resources).

I increased my networking efforts by joining hundreds of groups and amassed my friends list to nearly three thousand. I’ve had personal conversations with almost everyone, and I don’t add friends I can’t verify. However, I’ve learned the tragic challenges that many of these shattered families face.

[![Dear Special-Needs Parents: We’re Being Duped by a Faulty Healthcare System](https://www.assuaged.com/hs-fs/hubfs/Assuaged_December2019%20Theme/images/14915357_335964356763091_5310556310010292380_n-300x251-1.jpg?width=300&name=14915357_335964356763091_5310556310010292380_n-300x251-1.jpg)](https://www.facebook.com/groups/CraniofacialAngels/permalink/196037987527439/)

R.I.P. Kip Ryder (Saethre-Chotzen Syndrome)

Every day when I open my[Facebook](https://www.facebook.com/CraniofacialVegan), generally the first thing I see is a child suffering from chronic disease attributed to their[craniofacial disorder](https://www.faces-cranio.org/Disord.htm). In moments of apprehension and fear, parents often post their experiences, including graphic images. They reach out in hopes of securing guidance from other parents who’ve endured the same experience.

Many parents are aware of the hundreds of craniofacial support groups available, and so they utilize them to help answer questions that their doctors can’t.

Mother Beverley Harry admits that a nutritional diet led the way to excellent health for her nine-year-old daughter, Becca, who was born with a rare form of [Crouzon’s Syndrome](https://rarediseases.org/rare-diseases/crouzon-syndrome/). “It’s been a journey fighting doctors for information about nutrition because it goes against their practice and they aren’t knowledgeable on the subject,” she says. “I chose to take control of my child’s health and ditched doctor care, and I only utilize our medical doctor when needed for surgeries, etc.”

Beverley affirms that it’s our responsibility to look after our children’s health. She’s had numerous doctors misinform her and prescribe ineffective and even harmful medications. Things have dramatically improved since changing her daughter’s diet including the use of [pure colloidal silver](https://www.purestcolloids.com/mesosilver.php), a miraculous naturopathic mineral healing agent.

[![Craniofacial Disorder](https://www.assuaged.com/hubfs/Assuaged_December2019%20Theme/images/STATIONERY-2.jpg)](https://share.hsforms.com/1s1nTtbUFSxeY0foTZYqQvQ3ycu3)<https://share.hsforms.com/1s1nTtbUFSxeY0foTZYqQvQ3ycu3>

*Becca now no longer needs physio or occupational therapy as she’s gained tremendous strength, and all development delays have significantly improved.*

I was born with [Treacher Collins Syndrome](https://rarediseases.org/rare-diseases/treacher-collins-syndrome/), and I’ve also been a victim of this flawed healthcare system. October 2015, I nearly died in the Utah Mountains landing myself in the Salt Lake City Hospital for a week. I was found blue and foaming at the mouth, and after the incident, my oxygen levels dropped to the low sixties during my sleep. Doctors couldn’t figure out what was wrong, so I was discharged with a severe sleep apnea diagnosis.

I’m awaiting a second [major jaw reconstruction](https://www.seattlechildrens.org/media/press-releases/2016/revolutionary-surgery-helps-children-with-severely-restricted-airways-breathe-without-a-tracheostomy/) surgery due to severely restricted airways and because the first one was unsuccessful. I was informed that the first jaw surgery failed because I was too young and undeveloped at age nineteen.

![Major Jaw Reconstruction](https://www.assuaged.com/hs-fs/hubfs/Assuaged_December2019%20Theme/images/17626466_411066869252839_4617932403836235906_n-300x249.jpg?width=300&name=17626466_411066869252839_4617932403836235906_n-300x249.jpg)

One year following my near-death experience I became plagued with several chronic illnesses including eye infections, acute infectious sinusitis, digestive issues, enlarged spleen, [oozing Baha infections](https://bmcearnosethroatdisord.biomedcentral.com/articles/10.1186/s12901-016-0033-5), headaches, constipation, hemorrhoids, chronic fatigue, and progressive periodontal disease. Also, I have four braces, for my wrists and knees due to advanced arthritis and problematic muscle and ligament pain involving cracking and popping joints.

One of the most significant challenges I’ve overcome is suffering from four to six monthly chronic bladder and yeast infections. At one point, I was on my menstrual period for nearly two months.

That is when I discovered that prescription drugs are incredibly detrimental to the body.

These pills are not natural earth substances. They are harmful man-made compounds that are far from curing illness. The acclaimed documentaries *[American Addict](https://www.amazon.com/American-Addict-Gregory-Smith/dp/B00JRY6HZM)* reveal the pharmaceutical trade and how many Americans are being affected today.

![Dear Special-Needs Parents: We’re Being Duped by a Faulty Healthcare System](https://www.assuaged.com/hs-fs/hubfs/Assuaged_December2019%20Theme/images/17884447_418683075157885_328954495685180086_n-1-133x300.jpg?width=133&name=17884447_418683075157885_328954495685180086_n-1-133x300.jpg)Last year I made a choice to walk away from all prescription drugs, and my husband and I decided to adopt herbalism and organic vegan diets. Both of us endured different illnesses. My husband, a disabled [USMC](https://ptsdtreatmenthelp.com/post-traumatic-stress-disorder-ptsd-in-the-marines/) veteran and [PTSD](https://www.ptsd.va.gov/public/ptsd-overview/basics/how-common-is-ptsd.asp) sufferer, was diagnosed obese and pre-diabetic, and I was taking more than fourteen prescription drugs for numerous ailments including depression. Nothing worked, and I felt so sick that I couldn’t function. I relied on narcotics for pain and anxiety. For years, I had been questioning why every prescription gave me more problems. One medication regularly led to three more.

I’ve accumulated so many pills over the years that I could submerge my entire body with them, literally.

I felt my body failing and my mentality slipping while being trapped in a clout of destructive thoughts. I was even headed towards a hysterectomy at age thirty-one, because of birth control pills I’d taken for over fifteen years. The quality of my life has vastly improved since I’ve discontinued taking medication.

I’m here to tell you that we live in a sick care system that is devised as a complex maze that has us clambering out to referred specialists who can’t answer our questions. They deny nutrition and instead use the power of their pen.

This process leaves us feeling exhausted, especially when the costs associated with taking time off work and traveling far distances drain our bank accounts.

Many of us are startlingly aware of the health epidemic taking over our country, and it’s not just the craniofacial community either. It’s America. Our country is ranked as having the lowest food qualities in the world. There are toxic chemicals and [GMOs](https://assuaged.com/eating-clean-in-2017-usda-organic-and-non-gmo-project-verified/) allowed in our foods that other countries don’t allow.

This particularly affects us in the craniofacial realm because naturally our bodies are more sensitive. However, make no mistake, the ongoing sick-care epidemic is affecting everyone everywhere.

Evidence of this has been documented in the groundbreaking films *[What the Health](https://www.netflix.com/title/80174177)*, *[Forks Over Knives](https://www.netflix.com/title/70185045)*, and *Hungry for Change*, all available on Netflix.

Please take some time to educate yourself on holistic health practices and organic veganism for the sake of discovering complete wellness for you and your children. We deserve better than this, and it’s during these times we need to support each other the most.

If you’re ready to make a change today, here are some of the health products I currently take.

[![Dear Special-Needs Parents: We’re Being Duped by a Faulty Healthcare System](https://www.assuaged.com/hubfs/Assuaged_December2019%20Theme/images/Purium-Favs-Edit-1.jpg)](https://ishoppurium.com/?giftcard=ASSUAGED)

- [BioMedic](https://ishoppurium.com/products/biome-medic-4-pack?variant=53593512789/?giftcard=ASSUAGED) for removal of [glyphosate](https://www.theguardian.com/environment/2018/may/16/glyphosate-shown-to-disrupt-microbiome-at-safe-levels-study-claims) and to restore gut health 
- [Apple Berry PowerShake](https://ishoppurium.com/products/power-shake-original-30-servings?_pos=3&_sid=3862b6dda&_ss=r/?giftcard=ASSUAGED) and [Kamut](https://ishoppurium.com/products/kamut-blend-family-size-270g?_pos=2&_sid=2bbbee436&_ss=r/?giftcard=ASSUAGED) for adequate daily nutrition.
- [Revive-It-All](https://ishoppurium.com/products/revive-it-all-90-ct?variant=55054471637/?giftcard=ASSUAGED) for mental acuity, focus, and oxygen
- [Super Lytes](http://ishoppurium.com/products/super-lytes?variant=53100606293/?giftcard=ASSUAGED) for bodily hydration
- [Juice Bar In a Bag](https://ishoppurium.com/products/juice-bar-in-a-bag/?giftcard=ASSUAGED) for optimal daily nutrition
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- [Vir-U-Sure](https://ishoppurium.com/products/vir-u-sure-60-ct?variant=55054481941/?giftcard=ASSUAGED) for boosted immunity
- [Hemp Oil](https://blog.puriumcorp.com/2018/04/27/cbd-order-form//?giftcard=Assuaged) for pain relief
  
  Find your own BALANCE and DISCOVER more delicious organic non-GMO health products at[PURIUM](https://ishoppurium.com/?giftcard=ASSUAGED). Use our affiliate code[ASSUAGED](https://ishoppurium.com/?giftcard=ASSUAGED) for $50 off.
  
  In addition to my advocacy for[craniofacial differences](https://www.facebook.com/CraniofacialDiaries/), my husband, Thane, and I built a charitable reference and recipe app named[Assuaged](https://assuaged.com/) to help guide families find safe foods and products to buy. We founded Assuaged on the concept of the[Blue Zone movement](https://bluezones.com/exploration/loma-linda-california/) and in the region of Loma Linda, California—one of only five geographical areas in the world and the only one in the United States.
  
  Research studies and several news reports have established that blue zone residents maintain supreme health and live past the age of one hundred.
  
  We are passionately seeking to bridge the gap between healthcare and self-care to meet the needs of healthy living as a method for longevity. We’re going beyond charity and unifying people through love and compassion.
  
  [Assuaged](https://assuaged.com/) is now available to download for [FREE](https://itunes.apple.com/us/app/assuaged/id1300506711?mt=8) via iOS.![Cynthia Today at Optimal Health](https://www.assuaged.com/hs-fs/hubfs/Assuaged_December2019%20Theme/images/Untitled-design-7.png?width=900&name=Untitled-design-7.png)

Optimal Health: The Murphys Happily Married 11+ Yrs

[![Cynthia Today at Optimal Health](https://www.assuaged.com/hubfs/Assuaged_December2019%20Theme/images/Craniofacial-Events-2.jpg)](https://www.facebook.com/groups/CraniofacialEventsConnection/)

We just gifted our 4th BRAND NEW Cochlear Baha Power System to a craniofacial family denied by medical insurance. Check out our ➡️ [charity giveaway page](https://assuaged.com/giveaways/).

 

[![Cochlear Baha Power System](https://www.assuaged.com/hubfs/Assuaged_December2019%20Theme/images/Baha3-Pic-1-1.jpg)](https://assuaged.com/giveaways/)

<https://assuaged.com/giveaways/><https://www.facebook.com/CraniofacialVegan/posts/869978430028345>

 

## JOIN THE CONVERSATION

**Browse more *healthy living plant-based*** ***recipes* on our **[**FREE**](https://itunes.apple.com/us/app/assuaged/id1300506711?mt=8)** Assuaged **[**iOS**](https://itunes.apple.com/us/app/assuaged/id1300506711?mt=8)** App!**

[![Assuaged Winning Design_RGB](https://www.assuaged.com/hs-fs/hubfs/Assuaged%20Winning%20Design_RGB.png?width=200&name=Assuaged%20Winning%20Design_RGB.png)](https://share.hsforms.com/1yAVmY0XGTb-o1OiHADSJNg3ycu3?__hstc=174555261.dd3915dd0bfe6e5d5665e79122653392.1583678000410.1583678000410.1583693246077.2&__hssc=174555261.20.1583693246077&__hsfp=3106700895)

 

**[![App Store](https://www.assuaged.com/hs-fs/hubfs/Assuaged_December2019%20Theme/images/2000px-Download_on_the_App_Store_Badge.png?width=186&height=56&name=2000px-Download_on_the_App_Store_Badge.png)](https://apple.co/2mwKQ7x)**

### Pick Your Type of Deliciousness!

"A dietary shift toward plant foods and away from animal products is vital for promoting the health of our planet."

Start with either a [Meal Kit](https://trifectanutrition.llbyf9.net/9gEJq0) or Fresh, Prepared Meal plan, and then customize your weekly delivery.  

It’s easy peasy. Get exactly what you want—meal kits, prepared meals, or both—every time.

And don’t worry, our favorite foodie brand [Trifecta](https://trifectanutrition.llbyf9.net/9gEJq0) has lots of Less Prep, high-protein and gluten-free meals.

✅ Immunity-Rich Meals  
✅ Fast-Prep & No Hassle  
✅ Ease Cooking Stress  
✅ Enjoy Plenty of Variety

[![️ PLANT FOOD](https://no-cache.hubspot.com/cta/default/6641787/6bf41520-943c-4c02-8afb-5ea52f3633c4.png)](https://cta-redirect.hubspot.com/cta/redirect/6641787/6bf41520-943c-4c02-8afb-5ea52f3633c4)

[![Share on Facebook](https://static.hubspot.com/final/img/common/icons/social/facebook-24x24.png)](http://www.facebook.com/share.php?u=https%3A%2F%2Fwww.assuaged.com%2Fnews%2Fdear-special-needs-parents%3Futm_medium%3Dsocial%26utm_source%3Dfacebook) [![Share on LinkedIn](https://static.hubspot.com/final/img/common/icons/social/linkedin-24x24.png)](http://www.linkedin.com/shareArticle?mini=true&url=https%3A%2F%2Fwww.assuaged.com%2Fnews%2Fdear-special-needs-parents%3Futm_medium%3Dsocial%26utm_source%3Dlinkedin) [![Share on Twitter](https://static.hubspot.com/final/img/common/icons/social/twitter-24x24.png)](https://twitter.com/intent/tweet?original_referer=https%3A%2F%2Fwww.assuaged.com%2Fnews%2Fdear-special-needs-parents%3Futm_medium%3Dsocial%26utm_source%3Dtwitter&url=https%3A%2F%2Fwww.assuaged.com%2Fnews%2Fdear-special-needs-parents%3Futm_medium%3Dsocial%26utm_source%3Dtwitter&source=tweetbutton&text=Faulty%20Healthcare%20System%20is%20Duping%20Special-Needs%20Parents) [![Share on Pinterest](https://static.hubspot.com/final/img/common/icons/social/pinterest-24x24.png)](http://pinterest.com/pin/create/button/?url=https%3A%2F%2Fwww.assuaged.com%2Fnews%2Fdear-special-needs-parents%3Futm_medium%3Dsocial%26utm_source%3Dpinterest&media=http%3A%2F%2Fcdn1.hubspot.com%2Fhub%2F158015%2F305390_10100548508246879_837195_59275782_6882128_n.jpg) [![Share on Email](https://static.hubspot.com/final/img/common/icons/social/email-24x24.png)](mailto:?subject=Check%20out%20https%3A%2F%2Fwww.assuaged.com%2Fnews%2Fdear-special-needs-parents%3Futm_medium%3Dsocial%26utm_source%3Demail%20&body=Check%20out%20https%3A%2F%2Fwww.assuaged.com%2Fnews%2Fdear-special-needs-parents%3Futm_medium%3Dsocial%26utm_source%3Demail)

![Cynthia Cherise Murphy](https://www.assuaged.com/hubfs/15%20-%20Interns/Cynthia-Cherise-Murphy-Headshot-2024.jpeg)

### Cynthia Cherise Murphy

cynthia@assuaged.com

Cynthia Cherise Murphy is a distinguished multi-entrepreneur, with a track record of founding and growing two thriving enterprises, Assuaged Foundation and Be Your Highest. As an expert in marketing, Cynthia employs her substantial business development acumen to lead various initiatives. Armed with dual Master’s Degrees in Psychology and Public Health, her scholarly achievements are formidable. She is on the verge of completing her PhD in Business and Marketing, underscoring her unwavering commitment to academic pursuit. Driven by a mission to promote social change, Cynthia utilizes her expanding student network to empower underprivileged groups. By advocating for and creating pathways to vital resources, fundamental rights, and life-enhancing opportunities, she strives to improve the circumstances of marginalized communities. Cynthia's exceptional leadership, passion for social justice, and commitment to collaboration make her an influential advocate for change and a catalyst for progress in the world of entrepreneurship.

Topics: [Philanthropy](https://www.assuaged.com/news/tag/philanthropy) [Craniofacial](https://www.assuaged.com/news/tag/craniofacial) [Disability](https://www.assuaged.com/news/tag/disability)

> Read More About this Topic

<https://assuagedfoundation.org/>

### Ignoring Your Health Is Just As Bad As Ignoring Your Mother

Here at Assuaged, we are dedicated to promoting healthier living and equipping students with essential digital skills. [Support our mission](https://assuagedfoundation.org/) by visiting our non-profit website and discovering the impact we are making on public populations and the lives of public health students.

[Learn More](https://assuagedfoundation.org/) <https://assuagedfoundation.org/>

## Health has never tasted so good.

Organic and plant-based varieties have proven to reduce the risk and progression of disease. Guess what? You can still have fun on date night indulging in sweets you never knew existed.

[![I Want Organic Shopping For Less](https://no-cache.hubspot.com/cta/default/6641787/5c3dd626-b59a-4666-83be-a62f0fb60039.png)](https://cta-redirect.hubspot.com/cta/redirect/6641787/5c3dd626-b59a-4666-83be-a62f0fb60039)

### More blogs on this

<https://www.assuaged.com/news/adversity-wont-stop-the-health-wellness-mission-of-assuaged-inc>

[Adversity Won’t Stop the Health & Wellness Mission of Assuaged, Inc.](https://www.assuaged.com/news/adversity-wont-stop-the-health-wellness-mission-of-assuaged-inc)

<https://www.assuaged.com/news/fashion-trend-inclusivity-walking-the-runway-for-change>

[Fashion Trend: Inclusivity -- Walking the Runway for Change](https://www.assuaged.com/news/fashion-trend-inclusivity-walking-the-runway-for-change)

<https://www.assuaged.com/news/uplifting-covid-19-news>

[Uplifting COVID-19 News](https://www.assuaged.com/news/uplifting-covid-19-news)

<https://www.assuaged.com/news/volunteer-opportunities-assisting-to-ease-the-pressure-of-covid-19>

[Volunteer Opportunities: Assisting to Ease the Pressure of COVID-19](https://www.assuaged.com/news/volunteer-opportunities-assisting-to-ease-the-pressure-of-covid-19)

### About us

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© COPYRIGHT [Assuaged Foundation, Inc.](https://drive.google.com/drive/folders/1G-MuA1HoMgQm1yw_Rja8rpJwhr58Pb0F?usp=sharing) 2017 - 2026 . ALL RIGHTS RESERVED.

Assuaged Foundation is a 501c(3) non-profit that fosters a transformative remote internship program, coupling AI and digital marketing to empower marginalized 'at-risk' students. By integrating affluent mentors and military veterans, we cultivate digitally proficient leaders of tomorrow, thereby boosting their post-graduation employability. Through this immersive learning experience, we aim to educate, inspire, and uplift, contributing to the digital future of the health and wellness industry.

DISCLAIMER: The resources and content provided are not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding any medical conditions.

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Dear Special-Needs Parents: Being Duped by a Faulty Healthcare System?

This article aims to make the special needs parents aware of how a faulty healthcare system is ripping them off. Read Cynthia's take on the issue.

#### Share this

<https://www.assuaged.com/news/dear-special-needs-parents#share> <https://www.assuaged.com/news/dear-special-needs-parents#share> <https://www.assuaged.com/news/dear-special-needs-parents#share> <https://www.assuaged.com/news/dear-special-needs-parents#share> <https://www.assuaged.com/news/dear-special-needs-parents#share> <https://www.assuaged.com/news/dear-special-needs-parents#share> [mailto:?subject=https://www.assuaged.com/news/dear-special-needs-parents](mailto:?subject=https://www.assuaged.com/news/dear-special-needs-parents)

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