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Nine-Year-Old Katie Born with a Rare Disorder: Megalencephaly

Katie was diagnosed with megalencephaly at birth, a growth development disorder characterized by the overgrowth of the brain.


Dating with a Craniofacial Disorder What to Know

When speaking with a friend recently, I shared with her that when I met my husband, I lied to him about the number of partners I had been intimate...


Woman with Craniofacial Condition Auditions for America’s Next Top Model

When Nyle DiMarco was named “America’s Next Top Model” in the show’s season finale in December, he was the first deaf contestant to win a $100,000...


Treacher Collins Syndrome Self Advocacy with a Rare Disease

I wasn’t born an advocate for Treacher Collins Syndrome (TCS), and if anyone had asked me what I wanted to be when I grew up (which few people did),...

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Kick inflammation to the curb once and for all!

Did you know certain foods can cause increased bodily inflammation? Nourish your body with kinder and cleaner non-processed foods such as dark leafy greens, superfoods, fruits, root vegetables, nuts, seeds, grains, and healthy oils.

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